Steve has loved Green Day since our college days, and Jake and Steve jam to Green Day Rock Band on the Wii with style. While the language may not be perfect, I admit, Jake loves the beat and the songs and Green Day has become his favorite band. So, I bought the boys tickets and off they went last night.
Their encore song, "Wake Me Up When September Ends," so embodies my current life philosophy that I couldn't help sharing.
I'm still throwing up every day, and struggling to eat. If only I were "one stomach flu away from my ideal body weight" like the gal in "The Devil Wears Prada." Instead, I'd have to suffer for months. Not worth it! I need to get better and get active! So, with the help of my local and Chicago doctor teams, we are tweaking my meds and trying to find a solution. I've pulled the muscles in my back from vomiting so much for so long.
Otherwise, I am doing fine. I think my lungs are slowly clearing but I haven't tested my stamina as yet. I have heard from my 2 friends who went through the transplant with me, and while one is doing well (just tired in the afternoons), the other is also suffering some complications now, although different from mine. I think this process is just tough on the body and patience is needed. The tincture of time will surely fix these minor issues.
Wake me up when September ends. :)
You are such a brave lady, and I'm sure you will feel much better when September ends! My back hurts thinking about all your vomiting. Sure hope they can adjust your meds to help that. Big hugs to you. Bonnie
ReplyDeleteThe one thing that worked for my hyperemesis was Unisom. Es
ReplyDeleteYuk. Enough already. Really, you have had a long turn with this vomiting. And your poor back. Not acceptable!! Can't wait to hear that it is in your past. Green Day is my favorite band of my older age. Out of all the groups that my 5 kids listened to, this is one of the few that caught on with me, and I love their music. They have heart and they care about humanity. You have lucky kids to have such an aware mom... :)
ReplyDeleteI read your stories and feel overwhelmed by the magnitude of what you are going through. That you find the strength to keep writing and sharing your walk is mind boggling! That the way you share it continues to resonate with hope and optimism is even more mind boggling. You are so amazing. I reflect on what a role model you were to me in your pre-scleroderma life...and now I witness even more your grace and character in the most trying situations! Thank you so much for sharing your story. I am made more aware of perspective and attitude because of your willingness to tell it. Thinking about you every day and looking forward to sharing A Thai lunch with you "When September Ends". Melissa
ReplyDeleteHolly, so sorry to hear the vomiting continues. Ugh! I hope the drs can find the right cocktail to make you feel better! Mega dose zofran??? It was great to see the boys at the Ice Cream Social. They are growing up - going to a concert!!! Prayers and thoughts are with you... lisa
ReplyDeleteI'm sorry to hear about the vomiting. Thank you for taking the time to share. I hope it stops soon. In the interest of wishing you well, I would like to bring you some funny. Keep your expectations low.
ReplyDeleteMay your tummy trouble end soon so you will no longer be screaming at your shoes, loosing your cookies, seeing your food twice, yelling for your "Uncle Ralph", experiencing reverse peristalsis,upper GI evacuation of epic proportion, (So epic James Cameron might call you about making a movie) having your best friend hold your hair, and worshipping at the alter of the porcelin god.
Hang in there Holly. Your intestinal fortitude is something to be proud of. You've got guts and I hope they quit trying to escape soon.
Sending healing vibrations that are of the opposite of epicac.
Karen
The vomiting sounds awful - but it is part of recovery and will eventually end. So hang in there - You are a strong woman and we admire your courage. And we are glad you are home! - Ginny and Jim
ReplyDeleteHolly, you are a courageous soul. I also identify with Green Day's "Wake me up when September Ends." The lyrics and the melody weave together in such a way to create a connection with the listener which can lead to an emotional catharsis. Every time I hear the song I am amazed how my emotions surface and if I am lucky, they are released providing some relief.
ReplyDeleteThe good news is that September is nearly over.