Wednesday, April 20, 2011

Kickboxing Rides Again!

"There is no use trying," said Alice; "one can't believe impossible things."
"I dare say you haven't had much practice," said the Queen. "When I was your age, I always did it for half an hour a day. Why, sometimes I've believed as many as six impossible things before breakfast."
- Lewis Carroll


Kickboxing for Scleroderma began as a team. A team inspired by my recent diagnosis of scleroderma, and committed to finding a cure, we did our first fundraising walk in 2007. This team led to my blog, and my involvement with the Scleroderma Foundation... I know that I have enjoyed tremendous support through this process, and I hope that I have given back even a fraction of that which I have gained. Now that my strength is improved, I am committed to giving back even more.

You are part of this team, and I am so grateful.

My sons, Jake and Luke, has stepped up this year as team leaders.

Luke is our fund raiser, and you must see the adorable (no bias here!) video that he has created for our annual walk. Check the link above. Luke has lofty goals, and plays the task master both on his video and here at home, making sure we properly promote our team: LUKE LAPS! Please visit the page. :)

Jake--home today with me and recovering from a nasty oral surgery--is the head of the "envelope stuffing committee" as he calls it with all of his wonderful humor. He is technically one of 3 people running the annual Linda Lee Wells Memorial Education Day, a completely free event (you are all welcome to come!), run and staffed by an all volunteer group, to provide a top notch educational event.

See the link below, and join us!


Sunday, April 3, 2011

Work in Progress

I had a busy couple of weeks, seeing several doctors and collecting opinions on my progress. And, the general consensus seems to be that I am, in fact, a work in progress.

My new cardiologist, a specialist in heart failure, seems to think that my heart may be recovering. Additional formal testing is scheduled.

My pulmonologist seems very happy with the improvement in my lung CT, and was not horrified by the tiny drop in my pulmonary function testing. She thinks that the slight difference may reflect the difference in machines between Chicago and San Diego, or may reflect my underlying connective tissue tightness. Overall, however, she is happy with my progress.

My rheumatologist is also pleased with my progress. On substantially less medication than I was on pre-transplant, I do have some arthritis pains. My Raynauds symptoms are worse. But, again, overall I feel better, have more energy, and she is satisfied.

Regardless, everyone seems to agree that I have done what I can. The stem cell transplant can take up to 2 years to see full benefit, so now we wait. :)

I am sorry to report that Alexander needs a lay up to recover from a ligament injury, but I plan to find a way to keep riding. Stay tuned!