Welcome to Blog 2.0. After receiving a great deal of feedback about problems with the prior blog site, I have decided to move the blog here to google. I hope that it will be easier to use and access.
It seems my magnetic personality affected not just my blog site, but also my camera these past months. So, although I would like to share a plethora of fabulous photos from our Southern California Scleroderma Foundation Gala, I have but a few.
The Gala was held in November of 2009, and once again was a terrific event. Many patients with scleroderma, their families and supporters, as well as generous donors from the community attended. This event raises both funds and awareness in an effort to find a cure for scleroderma.
I was honored to be awarded the Janie S. Benner Memorial Spirit Award by her children,Wendy and Craig Benner. While Janie eventually lost her battle with scleroderma, she was inspirational to many during her life. It was a privilege to meet her children and hear about how Janie's disease impacted their childhood and adolescence. I am committed to doing what I can to follow in Janie's path by providing support and information to others with scleroderma.
So, a new year, renewed commitment, a new website... looking forward to a fabulous 2010 and hope to share it with you!
Hi Holly,
ReplyDeleteI love your new blog site and the lively news about you and your children. Thank you for sharing with all your friends and supporters. Otherwise, we know of you from Larry and Barb and we always enjoy sharing quality time with them. You are such an example for all.
Marie Claude and I were watching a good KPBS program on recent progress in identifying the role of a clogged artery in the neck on over 2/3 of MS patients and the expectation that it will lead to a cure. So we keep hoping and praying for you and your family.
Cheers and Love,
Robert
Dear Holly
ReplyDeleteFinaly I got your blog so I can tell you how much I admire your courage.
You look absolutely gorgeous on those pictures!
I always keep you in my prayers and if there is anything i can do... blood or bone marrow I am willing to do it for you if compatible.
I hope to see you with your family some time in France at our house.
Love and as we say "Bon courage"
Marie Claude Garin
Holly,
ReplyDeleteI just wanted to let you know that I think that you are amazing. I happened to find your blog, and was able to read some of it. It was an honor to provide you with my Mom's Award via the Scleroderma Foundation Gala. As I read your blog, I believe more and more that you have what it takes to inspire, educate, and encourage others. Just like my Mom. When she began with the Southern California Scleroderma Foundation it was a "kitchen table" organization. So remember that all good things start small, and that you can't always see all the trees that will grow from the seeds that you plant. Don't give up. You are special and I wish you all the best.
Sincerely,
Wendy Benner
(Janie and Dennis Benner's Daughter)