I had a busy couple of weeks, seeing several doctors and collecting opinions on my progress. And, the general consensus seems to be that I am, in fact, a work in progress.
My new cardiologist, a specialist in heart failure, seems to think that my heart may be recovering. Additional formal testing is scheduled.
My pulmonologist seems very happy with the improvement in my lung CT, and was not horrified by the tiny drop in my pulmonary function testing. She thinks that the slight difference may reflect the difference in machines between Chicago and San Diego, or may reflect my underlying connective tissue tightness. Overall, however, she is happy with my progress.
My rheumatologist is also pleased with my progress. On substantially less medication than I was on pre-transplant, I do have some arthritis pains. My Raynauds symptoms are worse. But, again, overall I feel better, have more energy, and she is satisfied.
Regardless, everyone seems to agree that I have done what I can. The stem cell transplant can take up to 2 years to see full benefit, so now we wait. :)
I am sorry to report that Alexander needs a lay up to recover from a ligament injury, but I plan to find a way to keep riding. Stay tuned!
Except for Alexander, it all sounds like a good work in good progress. Hurrah! Thanks for the update! You are often in my thoughts. lisa
ReplyDeleteWhew! Thank you for posting. The news sounds pretty good, all in all, and for that we are really grateful. Alexander will be better in no time also, and that will be even better.
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