They say in Chicago, if you don't like the weather, just wait 5 minutes.
I admit I feel like I'm twisting in the wind right now, living in the old good news-bad news doctor joke. Honestly, I don't know the truth (Maybe I can't handle the truth?), but I will put to blog this week's confusing twists and turns and perhaps somewhere find clarity.
First, I had my induction chemotherapy. It seems as though I am an over-achiever. I'm now officially neutropenic and locked away tonight until my procedures in the morning.
Next, I started a series of self-injected Neupogen shots last Saturday. Sadly, I'm an under-achiever. Apparently, I'm just not stimulating the bone marrow quite enough as yet. So, there is some doubt as to whether tomorrow's planned harvest will be a go, or be delayed. If it is delayed, it may also delay my return home for a visit with my kids.
I also had a visit with my cardiologist/ pulmonary hypertension specialist here in Chicago. He expressed some doubt about the diagnosis of pulmonary arterial hypertension (Yeah!) but suggested an alternate possible diagnosis of scleroderma-related restrictive pericarditis (Boo!) based on his read of the cardiac catheterization results. To provide clarity, another cardiac catheterization was ordered.... and should be done before I go home.
So, hoping all these pieces fall into place and that I can go home to my kids on Friday night as planned...
The photo above is my feeble and ultimately unsuccessful attempt to ride a Segway with my friend and doctor, Amy, on Monday. Luckily, she was able to complete the tour today while I made my appointments. She is here to help me through the harvest, and is much appreciated!
we love you hol. hope you make it home this weekend. xo, rich, sofia, ava and alicia
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