I drove up to UCLA today to see my specialist in scleroderma, Dr. Furst. He reviewed all of the data collected in Chicago and gave me a thorough examination. First, he feels that my skin has already relaxed somewhat, which he believes indicates that I will have a good result from the transplant. Second, he feels that the abnormal cardiac catheterizations results indicate cardiac involvement with scleroderma, rather than PAH. While this is not exactly great news, it is better news than PAH.
He has advised a more aggressive medication regimen to help solve the ongoing upchuck issue--wish I had Karen's silver tongue, but you can check comments from my last post if you need a chuckle... no pun intended!
And, I didn't throw up all day! I almost hate to write that, 'cause I don't want to ruin it, but there it is. :) Progress!
Holly,
ReplyDeleteI'm happy that you are improving.
What is PAH ??
Joe
Good news! Yah! lisa
ReplyDeleteSorry! Refer to prior posts... PAH is pulmonary hypertension. :)
ReplyDeleteLove,
Holly
What faaaaabbbb news, hang on in there, things can only get better!!
ReplyDelete( http://www.youtube.com/watch?v=455gh0D1V3Y )(fingers,toes, etc all crossed). Just a thought regarding how sore all your back muscles are, have you tried a Tens machine it has always worked wonders for us? Sending our love to you and your gang.xxxx
Great news!!! XO, Jolie
ReplyDeleteI would be interested in as to why to vomitting and what are the remedies??
ReplyDeleteAloha
Dr. Mike
Great news! Still thinking of you.
ReplyDeleteVictoria
What a great picture. Hooray for progress! Es
ReplyDeleteHeard from Steve that your having mind numbing body aches...Wishing from the bottom of my heart that you recover quicky so we we can go on long walks again. You are an inspiration to all of us .
ReplyDelete