Unfortunately, I got the boot.
My right heart is under strain, as revealed by the cardiac catheterization and the cardiac MRI. This strain increases mortality with stem cell transplant.
I am no longer eligible for the stem cell transplant in the ASSIST trial.
Steve and I have some big decisions to make about how we plan to move forward. Kristin and Dr. Burt are incredibly supportive and have given me options, but there is no good answer.
:(
What opens have they provided you with?
ReplyDeleteI haven't followed your story from the beginning but just wondering what treatment you've already tried? Stem cell is typically the last option after others have been exhausted. From the look in pictures I've seen, you don't seem to be on that last option yet.
Holly, I am so sorry. Out thoughts are with you. Love, Pam and Greg
ReplyDeleteHolly, I'm sorry for the disappointing news. While this door has closed, maybe a better one will open. Praying for you. lisa
ReplyDeleteThere must be a better option for you, and will pray for that. You are on my heart, Holly. Please try to remain positive. Love you. Bonnie
ReplyDeleteDear Holly -
ReplyDeleteI can only begin to imagine how this must feel for you and Steve. You are a strong fighter and that's how you have made it this far, so I know you and your doctors will find some other option that hasn't shown itself yet. Please take some comfort from all the prayers and good wishes that all of us who love you are offering for some better news to appear on the horizon.
Love and hugs,
Elaine
Well then, this was not your door. But you will find the right one to open. You will. Love you, Mary
ReplyDeleteWe love you Holly...Rich, Alicia and the girls.
ReplyDeleteHolly:
ReplyDeleteKeep searching. I share your disappointment and all I can say is I love you and have to believe there is or soon will be another good option.
PapPap
Dear Holly
ReplyDeleteRuss and I send you our positive thoughts and love.
Glenda
Holly -
ReplyDeleteWe may not always understand the path laid out, but we will never lose our faith in you.
Love,
John and Tricia