Or is that Fahrenheit?
Well, I'm leaving for the start of my stem cell transplant escapades in 32 days. June 6. I'm starting to make some preparations... I bought a used exercise bike on Craig's List so that I can pedal away and watch some TV when I get home--you may recall I will be banned from the stable. Although, honestly, I'm going to push for some visits with a mask on... I can't imagine being away from the stable completely for such a long time.
I'm trying to get summer camps together for the boys to keep them busy. Jake is even signed up for a week away in Washington, D.C.! He was invited to a leadership program and he is raring to go. He is also hoping to spend a week as a ball boy at the Southern California Open tennis tournament. Luke will spend that week in a swim, golf and tennis camp with his good friend, Jenny. The boys will be busy, but I have to actually nail all these plans down and pay for it! Wish me luck!
We are even going to squeeze a family vacation in between testing and harvesting. I will be in Chicago June 6 for about 10 days for testing, zip home for Jake's graduation, and then we're off to Europe! When we get home, I'm slated to go back to Chicago for 2 weeks of treatment and the stem cell harvesting procedure. Then I'll be home for about 10 days, and finally be admitted to the hospital in August for the transplant itself.
I'm excited, anxious and a bit afraid. It's going to be a really short month and then a really long year.
The thermometer is a funny touch... WOW, you have been busy. That explains the lack of Thai lately. Can we fit it in proir to Chicago? If you are up for it let me know, ...think it is my turn to treat.
ReplyDeleteHolly,
ReplyDeleteMy name is Sondria Berman and I write for the Scleroderma Foundation's quarterly magazine, the Scleroderma VOICE. We are always looking to feature new stories from individuals living with scleroderma, and I was wondering if you would be interested in sharing your story with our readers?
If so, please contact me using the information below and we can discuss the details further.
Kind Regards,
Sondria Berman
Communications Specialist
Scleroderma Foundation
300 Rosewood Drive Suite 105
Danvers, MA 01923
t. 1.978.463.5843 ext. 48
f. 1.978.463.5809
e. sberman@scleroderma.org
www.scleroderma.org
looks like a busy summer for you...I'm praying this upcoming year your health improves and your feeling better.
ReplyDeleteCongrats to Jake! He must take after you with his leadership skills. I hope you have a wonderful summer, and I'm so happy for you about the planned transplant in August. You are constantly in my thoughts and prayers!
ReplyDeleteSo glad to hear that your time in Chicago has been scheduled. Sounds like a busy summer for the family!
ReplyDeletePeace & Love,
Suzie and the kids
A busy year, and I very good one I think :). So glad to hear your news.
ReplyDelete